Science didn't understand my kids' rare disease until I decided to study it ｜ Sharon Terry｜TED https://diler.tube/videos/watch/f33dbf8b-3d51-43d9-8233-20beb781b924 Meet Sharon Terry, a former college chaplain and stay-at-home mom who took the medical research world by storm when her two young children were diagnosed with a rare disease known as pseudoxanthoma elasticum (PXE). In this knockout talk, Terry explains how she and her husband became citizen scientists, working midnight shifts at the lab to find the gene behind PXE and establishing mandates that require researchers to share biological samples and work together. Author: TED Sat, 23 May 2026 19:24:20 GMT https://validator.w3.org/feed/docs/rss2.html PeerTube - https://diler.tube Science didn't understand my kids' rare disease until I decided to study it ｜ Sharon Terry｜TED https://diler.tube/lazy-static/avatars/f58b270a-6076-478a-ad43-3888a532ecb4.png https://diler.tube/videos/watch/f33dbf8b-3d51-43d9-8233-20beb781b924 All rights reserved, unless otherwise specified in the terms specified at https://diler.tube/about and potential licenses granted by each content's rightholder.